Adam's biggest problem at the moment is boredom. "Dad, you have to work and Mum is always busy with things to do. And I don't like playing on my own." It's a tough one. The solution next week will hopefully be for Adam to attend school for the first time in a long time. Unfortunately, Tuesday and Wednesday are already ruled out in that regard because of MIBG injection on Tuesday (which will make him radioactive), and MRI scan followed by MIBG scan on Wednesday. I suppose we'll muddle through as best we can, same as we have been these past years. How quickly things change; not so long ago Adam was attending school regularly, cricket on Friday nights. And then bang, back in the fight, chemo in, cricket out, side-effect management instead of schooling. Then again we don't really reflect or dwell on such things, we simply get on with it. Just as well, it'd probably send us insane otherwise.
We're hoping to see little Ryan this weekend. And Julie & Gareth of course. They're currently fundraising to take Ryan to Tuebingen for a haploidentical transplant - you can catch up with their appeal here. Adam and Ryan get on so well, have done since they first got together out in Germany. Ryan is just 5-years-old, and although he is a little boy through-and-through full of playful cheek, he's amazingly grown-up at the same time.
Here's a photo of the two of them 'sharing a moment' during antibody therapy out in Germany.
Adam & Ryan in Greifswald, October 2011