Has it really been over a week since I lasted updated this thing? I guess it must have been. In truth there isn't a huge amount to report. Adam continues to be quite well - he is eating well, drinking well, sleeping well; we are gradually easing him back into his daily routines. He's still not producing his own platelets, which remains the only real problem at the moment.. Most recently he has had double transfusions (two bags of platelets each time) which has meant we have only been going back to the hospital every three days for them. Yesterday before his latest transfusion his platelet count had actually held steady overnight (from 13 to 14), but it remains to be seen if this is the first sign of some positive improvement or just a one-off. His numbers are being checked daily; weekdays the community nurse comes to us, and on Saturday and Sunday we run him up to Epsom General for a quick blood draw. It's been almost a year since we spent anything like this amount of time up at our local hospital; the nurses have all been remarking on how much Adam has grown since then!
Now that the little fellow is back home, our house is back looking like one large playroom. His 'belongings' - I can't even refer to them collectively as toys - have (once again) spread into practically every room. Whilst he was in hospital his Grandads between them decorated his bedroom (to Adam's own colour specifications), so we are just waiting for a new carpet to be fitted before he can move back in.
This afternoon we met with Adam's consultant for the first time since he completed stem cell transplant. His next set of scans are being scheduled for the end of March, to give sufficient time for all the treatment he's had to do what it's going to do. Once we have those results we'll have a better understanding of where things are at, and what sort of discussions we need to have regarding future courses of action. In the meantime we just have to keep Adam well, build him back up as much as possible, and deal with the after-effects of high-dose which basically means flushing all that nasty toxicity out of his system.