Now I could claim that I've been in this situation many times over the past 8 months, but actually that would be a gross exaggeration. It's only recently that I have been permitted to spend the night with his royal-middle-sized-ness (well that's my excuse and try telling me otherwise). But me and Mum can take it in turns now and tonight is my turn. It's been a rather tiring and rather emotional week. Since Adam was diagnosed we've kept quite a low profile I guess. I've never been a blogger, or a twitterer (?) or a facebook addict. We always had it in the back of our minds that once Adam was through stage one then we would start to raise money for ch14.18 antibody therapy (which is what some UK kids are already having over at Children's Hospital of Philadelphia). And I suppose we hid behind that decision a little. But after the last set of results we came to the realisation that ch14.18 wasn't the only reason why we might need to go to America and we were reaching a point where the course of Adam's treatment was starting to move out of the mainstream.
So having agreed that we needed to do something now or it would be too late (it still might be, but let's not go there) I felt we had to open up and get everything out there. I also wanted to have a decent website to focus attention and start to bring people who haven't been closely involved with our family into our world. I thought about trying to do it myself from scratch but the trouble was I hadn't done anything with websites for ages. So I roped in a very willing and very able Antonella who put together a first-cut of the design of the site within 24 hours. I like Antonella. She stays up late and plays with computers like me. Along with Lisa, who designed the Adam's Appeal logo, she is my new best friend. I somehow think that by the time this is done I'm going to have lots of new best friends.