Thursday, 30 June 2011

Not quite ...

http://www.epsomguardian.co.uk/news/9115287.Seven_year_old_cancer_boy_launches_appeal_to_fund_treatment/

Unfortunately the above article that appeared on the Epsom Guardian website today is a little different to the press release that I agreed with the charity. Small differences, but significant nonetheless.

I don't want to do the Epsom Guardian a disservice because they have been nothing but supportive of Adam's Appeal. In one instance last year they even contributed to saving us £26,000 during an impasse with Surrey PCT over funding for some of Adam's treatment. And of course I don't want them to stop writing stories about Adam!

However, I also don't want people to read the story and think we're doing something we are not, or that we're attempting to fool anybody. We are not launching an appeal, we did that last year as most people will know. As the actual press release said, it has been fantastically well supported. Fundraising is still ongoing albeit with less momentum than this time last year, because the truth is Adam's future is still as uncertain as ever. I also hoped it would make clear that we are still being supported by the same charity, it just has a different name now.

Perhaps I am being over-sensitive, but all I wanted was for the charity to make their appeal for runners, accompanied by a little update on Adam's progress. Not quite how it comes across ...

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