Friday, 6 August 2010


Yesterday was yesterday, today's another day. Taking Adam in to have blood taken for pre-harvest serology and collecting his GCSF. Blood results are only valid for thirty days so the previous set cannot be re-used. Amusingly the purpose is to check for HIV... you can't donate stem cells (even back to yourself) if you are HIV-positive.
I see very little point in dwelling on the events of yesterday. My life is stressful enough as it is. The money has been transferred across and the treatment is going ahead as planned. Our efforts are best focused looking forward rather than back.
I would hope the process continues to some logical conclusion (including the PCT meeting on Wednesday) for the benefit of the next family that comes along in this situation. Adam isn't the first child for whom this drug has been requested (although PCT is a matter of home, rather than hospital, location). The next family may not be fortunate enough to have the charitable support that enables them to take matters into their own hands.


  1. I am so angry on your behalf, I cant imagine how you are feeling. The NHS would do well to remember that it's our money they are spending. And for all those that will say the NHS cant afford to treat everyone, what is more worthy than children's cancer treatment!

  2. So sorry to hear you are going through this guys, it's simply wrong!!

    Jacob's Daddy