Just a quick update to say Adam is slowly recovering from the abscess surgery. He has the open wound repacked and dressed daily with the aid of entonox to manage the pain that this brings. Today we took delivery of a cylinder at home, courtesy of our wonderful community nurses who have been on the case for the past few days; so now Monday to Friday he can be seen to at home. The healing process is likely to continue for some weeks yet, and each time he empties his bowels the packing is forced out, the wound soiled and he must be bathed, cleaned and re-dressed. His course of oral antibiotics finishes this weekend.
On Monday Alison took him to the Royal Marsden for IV Zoledronic Acid and Vinblastine, which forms part of his current treatment regimen. He's not been doing much, but has managed XBox and this morning had a little game of Monopoly with Jake. Eating continues to be a big problem, and hard work for Alison and I. And he needs to start becoming a little more active now the residual pain from the abscess and wound is receding; again it's our job to push him into getting up and about a little more each day. It's been much the same for the past three months, but no sooner do we make some progress than something else crops us to knock Adam right back down again.
Hi,
ReplyDeleteI am not sure how I stumbled onto your blog, but I check it for updates on a daily basis. I am really overwhelmed by your son's bravery. I hope that his abscess has healed and he is more comfortable.
You may already be aware of this but, there is a petition to turn the White House gold to help raise Children's cancer awareness.
Maya Thompson from RockstarRonan.com has the link on her blog as well.
You do have to register and wait for email confirmation, but the whole process took less than 5 minutes. I was also able to register despite the fact that I am in Canada, so please do not let the fact that may be outside of the US or not a US citizen a deterrent.
I have posted the link below. Together we can help bring awareness.
https://petitions.whitehouse.gov/petition/light-white-house-gold-month-september-honor-pediatric-cancer-fighters-and-bring-light-cause/syV6M6wX?utm_source=wh.gov&utm_medium=shorturl&utm_campaign=shorturl
Jen