tag:blogger.com,1999:blog-5356602794377389177.post6846893807852621214..comments2023-11-30T08:40:36.727+00:00Comments on Adam's Appeal - Fighting Neuroblastoma: Aarghh …. !birdnihttp://www.blogger.com/profile/18408301699350177358noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-5356602794377389177.post-72336284610164606192011-06-17T19:18:00.297+01:002011-06-17T19:18:00.297+01:00Thinking about all of you lots....cannot imagine h...Thinking about all of you lots....cannot imagine how difficult this is. <br /><br />I know it's nowhere near in the same league, but when I was waiting for my transplant my lung wouldn't stop collapsing so after they told me that in order to leave the hospital I'd have to have it "glued" back up, which could in turn make a transplant impossible/fatal. Very tough decision not knowing what the future held...<br /><br />I think all you can do in these situations is follow your instincts and know that whatever your decision, it will be the right one based on the (limited) information you have at this time. I told myself that because there was no right answer, it meant there couldn't be a wrong one either.<br /><br />Love to you all. xTinypoppethttps://www.blogger.com/profile/18264261421802702883noreply@blogger.comtag:blogger.com,1999:blog-5356602794377389177.post-57832793664036437352011-06-16T03:19:04.597+01:002011-06-16T03:19:04.597+01:00While in the midst of my own son fighting cancer, ...While in the midst of my own son fighting cancer, I truly cannot imagine the pain you are feeling with all of this. I have not had time (yet) to read the whole blog but I get the gist...Britain sucks for medical treatment is so many ways (I'm English but live in America and my mom who has Lupus gets nothing there compared to what is offered here). <br />Are you able to get some kind of advice from the American doctors? I know everything costs ridiculous amounts here, but even just seeing if they agree with things might help (or not...I really have no idea but am throwing out suggestions). <br />Can I try asking my son's doctor? Not sure if it will work but I really want to help if I can. <br />I feel your pain, angst, and I know the heartbreak of watching your son take the poisons Dex, Dox, Methotrexate, 6Mp etc....It all is so unfair. But I am honestly so saddened that you have to travel and guess which treatment is right. <br />Love and sincerest hugs,<br />katy xAnonymoushttps://www.blogger.com/profile/06880295170339104548noreply@blogger.comtag:blogger.com,1999:blog-5356602794377389177.post-26696478110668098212011-06-14T19:37:31.100+01:002011-06-14T19:37:31.100+01:00I know zero about Adam's disease,but I do know...I know zero about Adam's disease,but I do know that doing nothing is the hardest course for a parent of a chronically sick child.<br />You feel like you have stopped fighting for your child - but you haven't, you are just take a rest before the next big battle! xxhappy_18https://www.blogger.com/profile/07437449503958665984noreply@blogger.comtag:blogger.com,1999:blog-5356602794377389177.post-70810702922201587392011-06-14T15:13:37.296+01:002011-06-14T15:13:37.296+01:00Whatever you decide will be right for you. In my t...Whatever you decide will be right for you. In my thoughts.Anonymousnoreply@blogger.com